I ask that you all share the announcement. My greatest hope is that people in need will find something beneficial here and we can't always know who that might be.
Thank you to everyone who has helped me to get here. Blessings Always!
Navigating Disability Road |
Well, today I am officially launching the website. I'm going through my address book and 'spamming' all my friends [if they remain my friends afterward].
I ask that you all share the announcement. My greatest hope is that people in need will find something beneficial here and we can't always know who that might be. Thank you to everyone who has helped me to get here. Blessings Always!
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I just received a flyer for the Barber Bay Beast Adapted Obstacle Course Event, Erie PA, Sept. 7, 2013. The event benefits the Barber National Institute, an organization that "makes dreams come true" for children and adults with developmental and physical disabilities. According to the flyer, the event is a 1.5 mile course with 6 obstacles that incorporate challenges like pushing, pulling and navigating ramps. Click on the image for the flyer, or, visit BarberBeast.org/adaptedcourse/. There continues to be more opportunities for people with disabilities, I call that inclusion. A good friend just shared some of the questions she had when her spouse became ill and she was dropped into the caregiver role. Questions that we all raise; questions that need answers:
Perhaps you have some insights or experiences that will answer one, many or all of these questions. Perhaps you have a question of your own?
"By this all men will know you are my disciples…" John13:35
Learning to love one another as we love ourselves is the first step in being a disciple. Loving one's self requires accepting and understanding who you are and where you are. If you are doing a poor job of loving yourself then you will certainly have difficulty loving your neighbor. Being created in the image of God has nothing to do with flesh and bone. We are more than our mortal bodies. We are more than a disease or condition. We are spirits that will live in eternity. Learn to suffer with grace and to strive to become better and not bitter. "Being a caregiver is a huge and, sometimes, overwhelming responsibility. There is just so much to do and that must take priority over all the other daily things that need to be done like shopping, cooking, cleaning, etc.
One of the most difficult parts is to see your loved one experiencing pain or struggling to do something and you can't help them. All you can do is sit there and pray that your efforts and support are enough. It can really rip your heart out. Then, who do I speak to; where do I get comfort and support? That loved one has enough to deal with already. It's so important for everyone one involved to communicate clearly and often. You may not be successful every time because emotions can really twist the message, but, you have to try." This is from a close friend who is a caregiver, thank you!! I came across this cute video about proper etiquette when interacting with people who have disabilities. It's especially useful for folks who have not had the good fortune to interact with 'us'. [best to view video in full screen] I have received physical therapy for many years. The hot item has always been 'theraband', those big, colorful rubber bands that enable you to exercise at home on your own.
I have just completed another stretch of in home therapy. This therapist was unique in his approach. He really pushed the value of isometric exercises. These are the exercises you perform like pushing against a wall or a railing. They are 'static' meaning that you don't move your muscles or limbs through their full range of motion. You just focus on a muscle group and then make it work. For example, to do an isometric on your bicep muscle, sit at the table with correct posture. Place your hand under the table and try to lift it for a count of ten. You'll feel that tonight! Please, that's just an example. Be well informed before you try any exercises on your own!!!! It has been two months and I am really beginning to notice results that carry over to my daily routines. The great thing is you can do these types of exercises anywhere. He also stressed that you should work hard at whatever task you are trying to strengthen your muscles for. If you want to walk better, walk. If you are trying to stand up, try that several times during the day. Practice, practice, practice. So, we don't need gym memberships, high priced personal trainers or piles of equipment. Keep it simple, be consistent and be persistent. Stay strong and safe. While most of my professional experience has been working with people who have physical disabilities, I have dabbled with a problem that continues to disable far too many people, drug and alcohol addiction.
Frequently, numbing your brain utilizing any drugs, alcohol or combination of these is one way many folks deal with the emotional side of disability. The risk for having doubled the problem is huge. Now you have the physical problem AND the addiction issues. Once again, the first step toward adjusting to a disability, including addiction or the combination of both, is finding the motivation, finding the desire to do something about it. Armed with that first step, you can begin to develop a plan to make life better. It's about truly doing your best. It's about seeking help. How can I help you today? What kind of statement does this make for you?
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